Saturday, July 30, 2016

Saturday (7/30/2016)

Update:

On Tuesday (8/2), I’ll be traveling to Indianapolis for an evaluation with Dr. Ertl concerning a possible surgical reconstruction of my amputated left leg.  My appointment with him is on Wednesday.  My son, Jon, will be going with me to do most of the driving. 

I’ve had pain issues in my limb for the last two years.  Through the efforts of my medical team I’ve been able to get out of the wheelchair and spend a very limited time each day walking.  But the pain is continuing and there aren’t any viable options left here; so I’m looking elsewhere.

My amputation is a traditional transtibial style.  One of the possible side effects of the traditional amputation is nerve pain developing.  I’ve had reactions to the major nerve pain medication typically used, so I cannot get relief that way.  “I asked my doctor and found out that this drug was NOT right for me!”  I don’t have any structural issues that doctors using the traditional approach see as operable.  But the pain is real and although it starts off fairly mild immediately, it grows in intensity the longer that the leg is on.

At this point, I cannot accept that I have to be stuck in a wheelchair most of the time and then being severely limited by pain with limited activities when I’m in my prosthesis.  I’m hoping to find a solution so that I can become more active, pain-free, and more fully involved in life again.

Doctor Ertl performs osteomyoplastic amputations, commonly called “Ertl” amputations named after his grandfather who invented the procedure.  An Ertl amputation requires both bony and soft-tissue reconstruction to provide an end-bearing residual limb for the amputee.  Contrary to a traditional amputation, an Ertl amputation ends up with the end or bottom of the limb weight bearing.  That changes everything!  One obvious difference between the style of amputations is the Ertl bone bridge connecting the distal ends of the tibia and fibula.  Check out the two photos.  The first one is an X-ray of my leg currently.  The second photo is an example of X-ray of a leg after an Ertl amputation. 


When asked the difference between the traditional and ertl amputations, I’ve been using this word picture (it isn’t perfect, but it is helpful).  The traditional amputation is like rough carpentry used to frame a house.  The Ertl amputation is like finish carpentry used in detailed woodwork.  The traditional method works fine for many amputees; but it hasn’t for me, so that is why I’m headed to Indianapolis to see if I am a candidate for this more detailed surgery.

I haven’t traveled very much in the last year and a half because riding in a vehicle tends to become painful to me after a while, so I am a bit concerned about how well I’ll do riding in the truck for 8 hours.  I’m hoping that it will be very clear to both the doctor and to me whether we should proceed with this surgery. 


I really hope that I am a candidate for this revision surgery because quite frankly, if I’m not or this doesn’t work, I think I’m stuck the way I am.  I’m very excited and grateful to get this appointment so quickly.  It will be great getting a better understanding and maybe taking  a step in the right direction.

Saturday, July 16, 2016

Saturday (7/16/2016)

Update:

The world's first parking meter was installed on this day in 1935 in Oklahoma City. I've given my prosthesis the nickname of "Parking Meter" because with my nerve pain I can only wear it for about three hours a day and then "Time has Expired" and I have to take it off. I'm seeking to have a revision surgery done so I can get "Free Parking." 

Monday, July 11, 2016

Monday (7/11/2016)

Update: 
For the last couple of years, I’ve been struggling to find a solution to my hypersensitive nerves.  They’ve severely limited my use of my prosthesis and my activities.  Switching to an elevated vacuum socket and the use of steroid injections has allowed me to get out of the wheelchair for 3-4 hours a day; sometimes I could do more but it always comes at a cost.  I easily can overdo it and then spend a week or two recovering and getting the pain back under control.  I’ve lost the ability to do so many of the things that I used to take for granted.  Sometimes it weighs heavily upon me. 

Recently, I’ve been struggling with whether I should I just accept my limitations and be content, or should I try another option.  I was told by the surgeons in Rochester at Mayo that reconstructive surgery would be the last ditch effort with limited hope for success. I’ve decided that I should try anyway.  Then if the end result is that I am still limited, then I will choose to be content.  I am considering having the surgery done in Indianapolis.  The doctor there uses a different technique (named after his grandfather) which should address my specific complaints better than a typical revision surgery.  I am currently in the process of setting up an evaluation to see if I am a suitable candidate for the surgery.  I’ve spent the day doing on-line research and communicated with a couple of other amputees that have had the same procedure done.  Their reports were very encouraging to me and have given me confidence that this is the right thing to try.  I’m not certain how soon the evaluation can be done and then how long it will take to get the surgery scheduled, but I’m excited that there is a possibility of improvement. 


Traveling to Indianapolis for the evaluation, then back for the surgery, and back for some post-op visits will be a bit of a hassle; but if it improves the quality of my life it will be worth in the long run.  I actually considered doing this last year; but I wasn’t quite ready to commit to it.  I’ve spent the last year turning over every rock nearby looking for answers and haven’t found any.  So now it is time to turn over that other rock that is farther away and will take more effort.  Hopefully I’ll find what I’ve been searching for.