Monday, June 19, 2017

Monday (6/19/2017)

Update:

I got the results of my brain MRI back...and the doctor said they didn't find anything!

Well what he actually said was that there was "no evidence of stroke, tumor, or other structural cause" for my symptoms.

So, I guess they did find a brain.

So that is good news since the only thing they could have found is life-threatening serious stuff. Although it doesn't put me any closer to knowing what the cause is, it does relieve some anxiety.

Like a game of Clue, I don't know who done it yet, but I have been able to cross a few suspects off the list.

My symptoms continue and I would like to find a treatable answer and resume my "normal" lifestyle.

Wednesday, June 14, 2017

Wednesday (6/14/2017)

Update: 

Since the beginning of May I haven’t been feeling well.  At first I thought it was just because I was out of shape and had been aggressively working at getting back into shape since the beginning of April.  While I enjoyed working out six days a week, I was extremely tired and worn out all the time.  I figured that I’m just older and I haven’t been able to be too active over the last four years, so it was natural that it would take a lot out of me to get back into shape. 

I would feel so worn out after exercising that I had to sit in the truck for up to an hour to feel good enough to drive home from the gym.  But then I started getting dizzy and almost passing out and I knew that something was going on and I needed to be checked out medically.

So far I’ve worn a heart monitor, had an EKG, and had a ton of blood work done.  And so far everything has come back normal; but that’s not the way I feel.  I have a constant headache.  If I do the slightest activity I become a bit dizzy or become mentally foggy (thinking slows down, etc.).  I feel a constant pressure on my head like I’m wearing a tight stocking cap that’s too tight.  Pain meds don’t help.  Sitting still in my recliner reduces my symptoms somewhat, but the moment I get up they come right back.  I usually can do one or two short things a day and then I’m done.  I haven’t even been to church for the last month because I wasn’t feeling up to it.  I actually made it to the worship service one week; but had to leave immediately because the music was so overpowering loud to me (my wife told me it was no louder than usual).  I’ve stopped going to the gym and curtailed most other activities, some of which I dearly miss. 

 I was just seen by a neurologist and I’m having a MRI of my brain done in the morning (6/15).  After his exam, he told me that he thinks “the MRI will show that I have a ‘normal’ brain.”  Ha! Ha!  He’s in for a surprise—I’m definitely not “normal”.  He obviously hasn’t heard any of my jokes or seen any of my memes on FB!!!

Right now, tentatively, my symptoms line up with something called “New Daily Persistent Headaches”.    The good news is that for some people the symptoms go away after a few months to a couple of years.  Of course, for some people the symptoms continue for years or decades.   Most of the time medication has little to no effect.  The doctor told me the best thing to do is to minimize the things that trigger the symptoms and take it easy.

Who knows?  Tomorrow’s MRI might show some other cause for what’s going on.  Or if nothing shows up on the MRI, another test that my primary doctor lines up might pinpoint a diagnosis. 

At first, I really figured it was something wrong with my heart.  Then I figured my arteries must be blocked.  Those don’t seem to be the problem, so now we are checking out the head (tumors, cancer, stroke, etc.).  The neurologist doesn’t think we’ll find any of those things wrong with me either.

I really don’t know where this is headed.  I don’t have any answers right now.  I’m just trying to make it through each day as we search for a diagnosis and hopefully a solution. 

The past month and a half have been hard on me emotionally.  My doctor has been taking good care of me but the medical system seems designed to test your patience.  Like most of us, I want answers right away and I want my problem solved quickly.  I also know that after I get this resolved that I am headed to surgery for my carpal tunnel and cubital tunnel (in both arms eventually).  So I feel like my summer is already gone.  This certainly isn’t the summer that I had planned.  And yet I can still say that life is good!



 I appreciate your thoughts and prayers.