Wednesday, August 12, 2015

Wednesday (8/12/2015)

Update:

Wheelchair:  I finally received my new wheelchair today!  My old one was loaned to me by a family member and it was old and I wore it out.  It has taken a long time to get approval from my insurance company for the chair. I started this process in December 2014.  I will say that other than for this item, my insurance company has been fairly easy to work with and has treated me well.  I think that part of the problem in getting their approval for this is that they had already purchased a prosthetic limb for me, so why did I need a wheelchair too?  Because of other medical issues, I am not supposed to hop, use crutches or a walker, so if my leg is off, I need a wheelchair.  I’ve had trouble wearing my prosthesis because of a hypersensitive nerve, so I’ve been in the wheelchair a lot since the first of the year and in it full-time since March/April.  Even before the nerve issue, I used my chair every morning and evening around the house.  My amputated leg is taking a lot longer to grow back than I thought it would J (smiley face), so I think I will be using a chair for the rest of my life. 

I basically got an identical version of my old chair except that my new chair has improved back support.  I think that part of my on-going back problem has been because of spending too much time in the old chair which had a standard back which offers no real support to the lower back.  My new chair has adjustable tension in the back which helps my posture while sitting in the chair and feels so good!  One of the reasons I got an identical chair is because I’m used to my current model and I knew that I could maintain my independence with it.  I’m able to wheel myself up and down the ramp to my house and load the wheelchair in the truck by myself even without a prosthetic limb.  Anyway, I couldn’t be happier with my new wheels.

My daughter, Ruth, and her husband were out at Yellowstone National Park with his family recently.  She got me a patch to sew on the back of my wheelchair.  It’s a highway warning sign that says “Grizzly Bear Crossing.”  My family’s nickname for me is ‘The Great Bear’ (TGB for short), so this is a very appropriate way to customize my new wheels!  I love it!

Back Pain/Sciatic Pain:  This past Monday (8/10), I received another steroid injection in four facet joints in my lower back.  The last time I had this done, I was basically pain free in my back for over six weeks.  I’m hoping to get the same kind of results from this treatment.  It takes up to a week for the steroids to fully kick in; but I’ve already noticed a decrease in back pain.  YES!!!  I’m hoping that I can severely reduce the amount of pain medication that I am currently taking to be able to sleep at night.  Unfortunately, the injections are not very effective for my sciatic nerve pain.  The last time it dulled the pain at least, which helped. I’ll take whatever relief I can get.   When I sit for too long, I get a strong, intense pain in my left posterior.  It feels like I am sitting on a walnut (or something similar) that is putting pressure on the leg bone.  Obviously that isn’t very comfortable and I can only endure it for so long.  Fortunately moving to the recliner or lying in bed reduces the pain.  So if I can wiggle and re-arrange it’s not so bad.  The amount of time that I can sit without pain varies, but usually I start feeling it after only about 30 minutes and the longer I sit, the stronger the pain becomes.   I’ve also been going to physical therapy for several weeks.  That along with the stretching exercises she prescribed seems to be helping as well.  Hopefully the sciatic pain can be minimized as well as the back pain.  Unfortunately, according to the pain clinic doctor, steroid injections work well on back pain but are minimally effective on sciatic pain.  I’m not certain what can help the sciatic nerve pain.

Referral to Rochester:  And then there is the hypersensitive nerve in the end of my residual limb.  With me, if it is not one thing, it’s another!!!  I am not able wear my prosthesis because of the intense pain that it produces.  My medical team here in Eau Claire is referring me to the Mayo Clinic in Rochester, MN for evaluation.  Hopefully they can come up with some solution that will get me walking again.  Rochester is about 2 ½ hour drive from my home.  My first evaluation is scheduled for early morning next Tuesday (8/18).  My medical team here has run out of ideas, nothing we’ve tried has helped, the pain just continued to intensify over time.  The last time I tried to put on my prosthesis, I couldn’t even force myself to stand up and put any weight on the leg because the pain was so bad.  I am supposed to bring my prosthesis with me to the appointment in Rochester—I am NOT looking forward to donning my leg so they can see what is happening.  My team here suggested that I might be stuck in the wheelchair for up to a year while the bruised nerve heals.  I really am hoping for some simple solution that can get me walking again soon.  The odds probably aren’t in my favor that a quick and easy solution is available, otherwise my medical team here would have suggested it; but I’m praying that these guys know something that my hometown guys don’t!  I am also apprehensive about the long drive over to Rochester because on most days the 10-15 minute drive to Eau Claire sets off the sciatic nerve pain.  This 2½ hour drive may be more than I can take.  Once again, I am using the word, HOPEFULLY.  Hopefully, I can enjoy the drive over with my wife and I can enjoy the scenery and the time together without major sciatic pain.  The timing of the facet injection I just had is perfect if it is going to give me any relief.

Getting Active Again:  Overall I have enjoyed the last couple of weeks because I was able to resume going to the gym to workout.  I’ve been lifting weights three times per week and swimming laps once per week.  Surprisingly, the swimming has caused me the most back pain.  Since it isn’t load bearing I would have assumed that swimming would be a pain-free form of exercise.  However that hasn’t been the case.  Maybe with this facet injection, swimming won’t hurt the back as much now.  Being in the wheelchair at the gym does have its challenges.  Many of the machines are set close together.  Some rows are narrower than others and I cannot get my wheelchair down it.  I have to plan my route to squeeze my chair up next to the machine I want.  Sometimes the next machine I want is only 2 or 3 places down the row, but I have to circle all the way around the room to find a path wide enough for my chair to fit through to get to it.  I get a workout just getting to the machines to work out!  At the end of my session, I’m tired and sweaty, my muscles are worn out, and it feels good to be active!  There is real satisfaction in getting a good workout in!  I know it is good for my physically; but it is GREAT for me mentally!  I get out of the house and I am challenged to work hard!  I am very grateful for my gym membership and the freedom I have to go do that on my own.  It would be much harder on me mentally to be stuck at home doing nothing.  I do wish I was able to get out and walk and ride my bicycle during this beautiful summer we are having; but I am content being able to do what I am doing.  I’ve been able to resume limited grocery shopping and other errands as well.  Being able to drive myself to some of my medical appointments is helpful as well.

Thought for the Day:  

At church last Sunday, the pastor preached from the Old Testament book of Exodus about Israel wandering in the wilderness for forty years.  It was a time of testing and character development for the nation.  They had some hard lessons to learn about patience, trust, and obedience.  Unfortunately, they often failed the test.  They lost faith in God and in His provision.  They grumbled and they complained because things weren’t perfect and as easy as they wished they were.  They lost sight of the future hope and goal; instead they kept looking back to “the good old days” of slavery which weren’t really all that good!  It was amazing how short their memory was.  Sometimes within a day or two of seeing God miraculously supply their needs, they would be back to grumbling and complaining about some need they had.  They often took their anger and frustration out on their leader, Moses, blaming him for every little thing that went wrong.   I understand that not having water to drink or food to eat in the desert is a very serious issue; but all they needed to do was turn to God in prayer.  It should have been pretty obvious by now that God was more than able to provide for them in the midst of the current crisis; but inevitably they developed a bad attitude.  They grumbled.  They complained.  They were mean to Moses who was doing everything he could to serve them.  But they didn’t see it that way.  Things weren’t going as smoothly as they wanted.  Their every need wasn’t met BEFORE they realized that they had a need.  They accused Moses of being a terrible leader and insisted that they were better off before Moses rescued them from slavery!  They became ‘drama queens’ where everything was worse than it truly was.  “Their lives were over.  They were going to die.  There was no hope of rescue.  Everything was worse than it had ever been before.”  Boy, talk about being extremely near-sighted! 

Yes, their problems were real.  But the problem they fixated upon really wasn’t the problem.  Their problem was their attitude about what was going on.  Their problem was lack of faith and trust in God.  Their problem was always looking for someone to blame.  Their attitude made a difficult or uncomfortable position impossible.

At the end of the service, I leaned over to my wife and said, “I hope I am not going to be lost in the wilderness of Mayo (the health system where I get care) for the next 40 years!”  I was thinking about the struggle it’s been trying to find answers to my on-going health issues.  She was thinking about a different facet and said, “Your attitude through all of this has been excellent.  You very rarely complain and whine.”  That made me feel good to know that is how she saw my response to my life for the last couple of years, although I know that sometimes, internally my attitude wasn’t as good and I’ve had to work at it.


I don’t know what trials and testing you are undergoing; but I do know that you cannot lose hope.  You have to continue to trust in God.  Respond in faith rather than in grumbling, complaining, and blaming others.  We need to act like we are faithful believers rather than those who have no hope in God.  Yeah, the path you’re on might be dark and scary.  It may seem like the world is falling apart all around you.  But if you’ve got God by your side, you’re never really alone and without the resources that you truly need.  Instead of railing against and complaining about your boss and your work situation, calmly turn it all over to God.  Continue to trust in Him while you do your job to the best of your ability, giving honor to those in authority over you because God’s word commands us to be those kinds of people.  If you think about it, all too often we live as if we are functional atheists instead of believers in God Almighty.  No matter what trial and testing you are facing: trust, obey, and faithfully look to God.

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