Tuesday, March 24, 2015

Tuesday (3/24/2015)

Update:

I’ve really been struggling with getting used to Lyrica.  I just started taking the full dosage today.  I started with 100 mg/day a week ago and now I am up to 300 mg/day.  Throughout this time, I haven’t driven and rarely been out of the house. Much of the time, I’ve been dizzy or lightheaded, or feeling lethargic and sleepy.  It has decreased my pain level which allows me to walk some which in turn drives my pain levels through the roof.  Sort of a Catch-22 situation.  We’ll see if after a week or two anything changes.  Right now it doesn’t feel good.  I’m a bit punch drunk.  If these side effects don’t disappear; I’m getting off of the medication.  At least before I could think clearly, stay active, and enjoy life.  This isn’t worth it.  But in a few days, my brain may clear up and it will be okay. 

This process of getting used to the medication is driving me crazy.   I’m getting tired of my wife staring at me and constantly evaluating me to see if I’m okay.  Right now, I feel whacked enough that I know I’m not okay.  I am actually glad that she is watching me because I might misjudge how I am feeling and acting (ever have someone who is drunk tell you that he is able to drive home safely?).  Even though I know it is good that she is watching, I don’t like that feeling.  This evening at dinner, after taking my third dose of Lyrica, I was talking to my wife telling her a story and then stopped to think of the word I was looking for, so I asked her, “Um, what do you call people like me?  Oh yeah!  I remember!  Amputees!” No wonder she is watching right now!  Whew!

This situation caused me to laugh at myself and think back to when I was caring for my mom.  I was always listening, looking, and evaluating when I was with her.  I wonder if she knew I was watching and checking up on her.  I wonder if it bothered her if she did.  I can’t think any way that I could have changed it; but it does give me a different perspective on things.  Maybe next time I’ll be aware of that possibility and try not to be too obvious.  I’ll keep my face more neutral.  There is always a time when we may need to speak up and directly address an issue; but we need to do it grace and sensitivity.  There are some conversations that seem to be difficult no matter how much time that you’ve spent trying to find the right words.  Taking the car keys away from your dad, or telling your mom she has to move out of her home and into an assisted living facility so that she will be safe.  All that can be so unsettling to your loved one.  The loss of their freedom. The dependence upon others. The claustrophobia of being housebound.  Being forced into new surroundings.  The possible loss of friends, neighbors, and their church family because of distance.  The sad realization that you are no longer in control of your life.


Tomorrow morning I have an appointment to get my current socket adjusted so that I can ride my bicycle.  Right now the back wall is too high and the back of my thigh is constantly being hit by the prosthesis as I pedal.  I also am supposed to have a mold taken for a new orthotic for my right foot and I get to pick out a new pair of shoes.  Last year I chose a pair of New Balance black walking shoes so I could wear them for everything.  And since they are prescription shoes with an orthotic, I HAD to wear them for everything.  I plan on getting something different this time.  There is still a bit of life left in these shoes so I’ll keep them and can switch shoes back and forth when I want to do so.  WOW! That will be nice!  One of the hardest thing to wrap my brain around was that I would have only one pair of shoes that I would wear all the time.  Ha!  Deciding to have my leg amputated wasn’t too mentally challenging for me but for some reason only having one pair of shoes really loomed large in my mind.  Because of several medical factors, I cannot just go to the shoe story and grab a pair to wear.  Mine are special shoes designed to wear with an orthotic insert.  I guess I could have purchased a second pair that would be interchangeable with my prosthesis and my orthotic; but I think it would have been about $250 for the shoes.  I didn’t think that I needed a second set of shoes that badly.  I’ve been thinking that I pick some sort of ½ boot or something like a hiking shoe that will work well outdoors.  We’ll see what options that I have and what I choose.  The other day I went to a shoe story with my son, Joshua, while he picked out some shoes.  I just looked around in awe at all the choices.  I remember as a teenager how I hated trying to buy shoes.  I never could figure out the right size.  What felt good in the store never felt right the next day.  Too tight.  Too large.  Just not correct.  As I watched my son try on shoes, I smiled when I realized that is no longer a problem for me.  Now I have professionals measure my foot and get me the perfect size.  By the way, when orthotist measured my foot, I found out that I had been buying my shoes a ½ size too small all of my life.

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