Tuesday, January 28, 2014

Tuesday (1/28/2014)

Update:

I had a very busy day medically yesterday.  I had a 10:15 a.m. initial appointment with my rehabilitation physician,   Dr. Schmidt.  We talked about the process of being fitted for and learning to walk with a prosthesis; we discussed my hobbies and what I would like to be able to do (bow and gun hunting, riding my motorcycle, riding my bicycle, hike in the woods, cutting and splitting firewood, etc.); we talked about a realistic time table for getting back on my feet.  She did a few strength and mobility tests; then got me set up with an initial appointment with my physical therapist for next week; and got an immediate initial appointment set up for me with the lab that will make my prosthetic.  One of the best things I learned today was to lay on my stomach for a few minutes to stretch the one muscle/tendon that has given me discomfort after sitting with my leg elevated.  It really felt good to do that!

At the prosthesis lab, I met with Leah a certified prosthetist and orthotist (I didn’t even know that those were real words before today) who will be working with me.  She examined both my feet and then showed me the parts of the kind of prosthesis I will be getting.  Leah explained in more detail the steps we’ll be taking to get me walking again.  She also made a mold of my right foot for a custom insole and measured my foot for my new shoes.  They look a lot like my current New Balance walking shoes.  They’re black and can be worn with dress and casual clothes.

If everything goes well, I’m thinking I will begin learning how to walk in March.  It takes time to learn to walk and build up time wearing my prosthesis before I will be able to go without too many restrictions.   Realistically, I should be walking fairly well sometime this summer (maybe late spring).

The extreme cold was an advantage for me today.  It caused cancellations at the prosthesis lab so I got in today right when the doctor called to set up an appointment for me. This was a very encouraging day to me.  I feel like I am making progress and took giant strides forward today.  Yeah!!

Today, Karen and I left the house at 9 a.m. and didn’t get back until 3 p.m.  We did eat a quick lunch at Panera’s Bread (one of Karen’s favorite places to eat) and made a 20 minute stop at Sam’s Club—but the rest was all medical appointment time.  Whew! 

Next Monday we get to do it again.  I meet with the physical therapist in the a.m. to design an exercise program to strengthen my core and help prepare the muscles that I will use for walking; we’ll have a quick lunch; and then I have an appointment with our family doctor in the afternoon.    I already have “double appointments” set up on two other Mondays later in the month.  Both Karen and I have Monday off work so it works well so both of us can go and hear all the information and make any decisions together. 

The end of my amputated leg is a bit tender today after last night’s slip and fall.  It feels like any part of the body that takes a hard bump—it’s tender but there is no bruising.  It should be back to “normal” within a couple of days or I’ll have to contact the surgeon.  Pray that everything is fine and I haven’t set myself back by this happening.   And as soon as I took my shoe off last night, I changed into a sticky sock so I could not make the same error twice!

Thought for the Day:

In an NBC News Report (1/28/2014), Maggie Fox writes that “More than a quarter of U.S. families are burdened by having to pay for medical care, and almost one in six struggle to pay health care bills, federal researchers reported on Tuesday… Almost 1 in 6 families (16.5 percent) had problems paying medical bills in the past 12 months.  And nearly nine percent said they had medical bills they couldn’t pay at all… Other reports have shown that costly illnesses trigger about half of all personal bankruptcies in the United States.”

When a family is facing major illness or battling cancer, it is normal to think about the physical struggle, how to get the patient to all the doctor appointments, how does the family manage with only one parent to help while the other takes on a greater workload, etc.  It is easy to imagine the emotional cost of having our hopes and dreams for the future ripped away or the grieving that occur over the loss or limitation.  But a hidden reef that can shipwreck families facing a major illness is finances.  Health care costs are unbelievable!  I still have bills coming in for my eight day stay in the hospital, but right now I already have received over $40,000 in bills for medication alone!  That’s $5,000 per day—now that is some expensive IV medications!  And I’ll be the first to say that I happen to believe that I am worth every penny of it.  I am thankful for the medication and what it did.  It literally saved my life.  I wouldn’t be here without it.  But at what cost?

I really don’t have any answers.  I am the first to admit that I don’t know how our health care system got this way or how to fix it.  I just want to point out this “hidden” burden to many families.  I feel that it is insane how much things cost when supplied in a hospital.  With all the other pressure that they face because of the illness, families don’t need one more like this one.  This doesn’t happen to just families without insurance either.  Many people have policies that cover the catastrophic events; but even then, the family’s share of the bill is astronomical.

This puts a terrible strain on already tight budgets.  It increases pressure on the bread winner to work longer, harder to get more pay meaning that the family gets to spend less time together and perhaps the patient then is left on their own more than they should be.  Financial pressure can produce sparks and produces fights about spending.  It creates a tough balance between throwing every penny you earn against the mountain of debt or using a portion of income for some rest and refreshment. 

I remember over 30 years ago watching someone pay for their groceries with food stamps.  Besides the good things they purchased, there was also a “healthy” selection of junk food and soda.  I remember taking offense.  Someone older, wiser and more mellow than I was, suggested to me that maybe, those “unworthy” food items were the caregiver’s only means of an escape; that it brought a moment of pleasure to those faced with the burden caring for a loved one dying of illness and disease. 

The medical advances we’ve made in the last generation are wonderful but can be shockingly expensive.  Perhaps earlier generations didn’t have to deal with the ethical/medical/financial dilemma that we face.

In principle, I think that people should live within their means.  They shouldn’t purchase things that they cannot afford.  But when it comes to lifesaving measures in the hospital—I have a different viewpoint.  I don’t think we as a society should only care for those who can afford it.  I don’t think that someone without financial resources or insurance should have to check his wallet before getting the care they need.  But it is also a shame that families are destroyed financially by medical bills (I guess I should say by overly inflated medical bills).  I am not blaming or pointing the finger at any one group or entity (I don’t even know who should be blamed).  But something needs to change in our health system.

I don’t have any answers—I have more questions.  I don’t know who or what to blame.  It is all too easy to be okay with the status quo when you are relatively healthy and haven’t been touched by the problem.  I’m less certain what I think about the Affordable Health Care Act (except to say my health care is not that affordable).  Time will tell as we see what it will really accomplish; however it seems to have skirted the problem of actually lowering health care costs. 

It is tough to know what someone is going through.  Some people can handle stress and difficulties better than others.  Be careful not to develop a judgmental attitude.  Have compassion upon those hurting and in need.  As a society, we are joined together.  The idea of neighbor helping neighbor is appealing.  Yet, I know that there is no such thing as a free lunch—somebody always has to pay.   I have this predicament of wanting people to pay their own way (and not have the government force me to pay for others) and yet having compassion and not wanting to deny people the care that they need and the dignity they deserve as fellow human beings.  Oh my head hurts thinking about it!!!  Could I it be that I am becoming a more compassionate conservative!!! 


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